Dear Friends,
Judy Heumann - May her memory be a blessing.
The Pac Rim conference kicked off yesterday with a discussion on disability
studies. Later Judy Heumann was scheduled to speak. She died while we were
talking about the future of disability studies. A future we might not have
without Judy. Judy struggled with the vocabulary of disability studies. She
wanted everyone to use plainer language, and of course, that is a subject
for debate in disability studies. Disability studies, particularly
"critical" disability studies, can intentionally underpin the nonacademic
global disability rights and justice movements. Our day pondering the future
of disability studies left me affirming that not everything about disability
is disability studies, and that a disability studies perspective is creating
new social theory, sharper problem definition, and better research methods
that can contribute to the study of topics other than disability.
I was looking forward to continuing my debate with Judy. I will have that
debate about the utility and problems of academic language representing
social movements with my students in Judy's honor and I hope I can do
justice to her perspective. No disability studies scholar's death will be
announced within moments on NPR.
Now ask me how I feel about all these deaths-from Irv Zola, to Ed Roberts,
to Linda Gonzalez, to Neil Marcus, to Hale Zukas, to Judy. I am mad and sad
and determined to be more comfortable in study and advocacy and to blend
them to create a diaspora of disability studies' best ideas.
How do we honor Judy? We need to take both individual and collective steps
to us all "Being Heumann." When we meet in twos and threes we need to
develop three or four opinions, after all, Judy was proudly Jewish.
We can also honor Judy by being more intentionally and more carefully
international. Dial back to her role in the trio with Ed and Joan Leon
founding WID. The "W" is "World." While the anthropologist in me looks to
see what "disability" means as a concept in other cultures, I do have Judy's
voice in the back of my head saying, "So what? What do we do?"
I will treasure that not-so-small voice and remember watching her in corners
and hallways having intense one on one conversations with power while the
rest of us danced.
Shalom,
devva
Devva Kasnitz, PhD
Adj Professor, City University of New York-School of Professional
Studies-Disability Studies
Telecommunications Access for the Deaf and Disabled Administrative
Committee, CA
1614 D Street
Eureka, CA 95501-2345
Text and Voicemail: (510) 206-5767
Email: mailto:devva@earthlink.net devva@earthlink.net
If you don't know me, I prefer email, Skype with IM, or text as I do have a
significant speech impairment.
NOW IN PAPERBACK! Occupying Disability: Critical Approaches to Community,
Justice, and Decolonizing Disability
Editors: Block, P., Kasnitz, D., Nishida, A., Pollard, N.
http://www.springer.com/us/book/9789401799836
http://www.springer.com/us/book/9789401799836