Fw: Research findings launch: Disbelief and Disregard: Gendered Experiences of Health and Social Care for people with Energy Limiting Conditions

NH
Nancy Hansen
Tue, Aug 29, 2023 2:53 PM

Nancy E Hansen, PhD,

Professor, Director,

Interdisciplinary Master's Program,Disability Studies

Accessibility is not an optics issue or a choice it is a necessity

If you say I have special needs ... then just say the word disabled. Euphemisms only fuel ableism. Disability is not a dirty word.  Haben Girma
True Inclusion moves at the speed of trust. Atif Choudhury
128 Education Building

University of Manitoba, Winnipeg,

Manitoba, Canada, R3T 2N2

Email:Nancy.Hansen@umanitoba.camailto:Nancy.Hansen@umanitoba.ca

Chapter 18: DisAppearing Disability: Disability MAiD Invisible, by Nancy Hansen

https://canadianscholars.ca/book/disappearing/


From: The Disability-Research Discussion List DISABILITY-RESEARCH@JISCMAIL.AC.UK on behalf of Ana Bê Pereira ambaila@HOTMAIL.COM
Sent: Tuesday, August 29, 2023 7:17 AM
To: DISABILITY-RESEARCH@JISCMAIL.AC.UK DISABILITY-RESEARCH@JISCMAIL.AC.UK
Subject: Research findings launch: Disbelief and Disregard: Gendered Experiences of Health and Social Care for people with Energy Limiting Conditions

Caution: This message was sent from outside the University of Manitoba.

Dear Colleagues,

You are warmly invited to attend this webinar and please share in your networks.

Research findings launch: Disbelief and Disregard: Gendered Experiences of Health and Social Care

for people with Energy Limiting Conditions

For the last 18 months, researchers from University of Liverpool, Liverpool Hope University and

Chronic Illness Inclusion have been researching gendered experiences of disbelief and disregard in

relation to Energy Limiting Conditions (ELCs) also referred to as Energy Limiting Chronic Illness (ELCI).

Join us at 2.00pm (BST) on 14th September 2023 for a 90min webinar (with two short breaks) as we

launch the policy report and animation which document the results of the research. There will be

time for a Q&A. We will also launch a new project with opportunities for people with ELC/ELCI to get

involved.

This webinar will launch resources from the research, including:

 A series of briefing papers and a research report based on original data collected by Chronic

Illness Inclusion. This demonstrates the barriers to care experienced by people with ELCs.

 A short animation by Stacy Bias of YourStory.studio and Ell Rose of Fourfooteleven.com that

summarises the experiences of disbelief faced by people with ELCs in health care.

 We will also launch a new project with opportunities for people with ELC/ELCI to get

involved.

Access information:

The webinar will take place on zoom at 2.00pm 14th September 2023. It will last 90 minutes

including two short breaks. Live captioning will be turned on. There will be live BSL translation. The

webinar will be recorded to be made available online afterwards.

Register for the webinar here: https://www.eventbrite.com/e/research-findings-launch-gender-

health-care-energy-limiting-conditions-tickets-692346626397?aff=oddtdtcreator

best wishes,

Dr Ana Bê Pereira
Senior Lecturer in Disability Studies

Senior Academic Advisor
Fellow (FHEA)
Centre for Culture and Disability Studies
Liverpool Hope University
Hope Park
Liverpool

Student Drop-in hours: Please email to arrange a meeting time.

Office: SSB 015
Extension: 3117

Email: pereira@hope.ac.ukmailto:pereira@hope.ac.uk
http://www.AnaBePereira.comhttp://www.anabepereira.com/

Google Scholarhttps://scholar.google.com.au/citations?user=6STiGEgAAAAJ&hl=en&oi=sra
OrcIDhttps://orcid.org/0000-0003-2908-7851

Research Projects
Funded BA/Leverhulme project: Disbelief and Disregard: The Gendered Experiences of Energy Limiting Chronic Illnesses in Englandhttp://disbeliefdisregard.uk/

Selected Recent Publications:
NEW: Special issue: chronic illness and representation - JLCDShttps://www.liverpooluniversitypress.co.uk/toc/jlcds/17/2

Special Issue: Disability and Social Inclusion: Lessons from the Pandemichttps://www.cogitatiopress.com/socialinclusion/issue/view/332 (open access).

Bê, A. (2022) Disability. In: L. Shepherd and C. Hamilton (eds) Gender Matters in Global Politics: A Feminist Introduction to International Relations, Third Edition. Abingdon: Routledge.

Bê, A. (2020) “Feminism and disability: A cartography of multiplicity.” In: N. Watson and S. Vehmas
(eds) Routledge Handbook of Disability Studies. Abingdon: Routledge. pp. 421-435.

Bê, A. (2019) Disabled people and subjugated knowledges: new understandings and strategies developed by people living with chronic conditions, Disability & Society, DOI: https://doi.org/10.1080/09687599.2019.1596785

Bê, A. (2019) Ableism and disablism in higher education: The case of two students living with chronic illnesses. ALTER, European Journal of Disability Research, https://doi.org/10.1016/j.alter.2019.03.004

Bê, A. (2016) Disablism in the lives of people living with a chronic illness in England and Portugal, Disability & Society, 31:4, 465-480, DOI: 10.1080/09687599.2016.1181048

End of message This Disability-Research Discussion list is managed by the Centre for Disability Studies at the University of Leeds (www.leeds.ac.uk/disability-studies). Enquiries about list administration should be sent to disability-research-request@jiscmail.ac.uk Archives and tools are located at: www.jiscmail.ac.uk/lists/disability-research.html You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page.

Nancy E Hansen, PhD, Professor, Director, Interdisciplinary Master's Program,Disability Studies Accessibility is not an optics issue or a choice it is a necessity If you say I have special needs ... then just say the word disabled. Euphemisms only fuel ableism. Disability is not a dirty word. Haben Girma True Inclusion moves at the speed of trust. Atif Choudhury 128 Education Building University of Manitoba, Winnipeg, Manitoba, Canada, R3T 2N2 Email:Nancy.Hansen@umanitoba.ca<mailto:Nancy.Hansen@umanitoba.ca> Chapter 18: DisAppearing Disability: Disability MAiD Invisible, by Nancy Hansen https://canadianscholars.ca/book/disappearing/ ________________________________ From: The Disability-Research Discussion List <DISABILITY-RESEARCH@JISCMAIL.AC.UK> on behalf of Ana Bê Pereira <ambaila@HOTMAIL.COM> Sent: Tuesday, August 29, 2023 7:17 AM To: DISABILITY-RESEARCH@JISCMAIL.AC.UK <DISABILITY-RESEARCH@JISCMAIL.AC.UK> Subject: Research findings launch: Disbelief and Disregard: Gendered Experiences of Health and Social Care for people with Energy Limiting Conditions Caution: This message was sent from outside the University of Manitoba. Dear Colleagues, You are warmly invited to attend this webinar and please share in your networks. Research findings launch: Disbelief and Disregard: Gendered Experiences of Health and Social Care for people with Energy Limiting Conditions For the last 18 months, researchers from University of Liverpool, Liverpool Hope University and Chronic Illness Inclusion have been researching gendered experiences of disbelief and disregard in relation to Energy Limiting Conditions (ELCs) also referred to as Energy Limiting Chronic Illness (ELCI). Join us at 2.00pm (BST) on 14th September 2023 for a 90min webinar (with two short breaks) as we launch the policy report and animation which document the results of the research. There will be time for a Q&A. We will also launch a new project with opportunities for people with ELC/ELCI to get involved. This webinar will launch resources from the research, including:  A series of briefing papers and a research report based on original data collected by Chronic Illness Inclusion. This demonstrates the barriers to care experienced by people with ELCs.  A short animation by Stacy Bias of YourStory.studio and Ell Rose of Fourfooteleven.com that summarises the experiences of disbelief faced by people with ELCs in health care.  We will also launch a new project with opportunities for people with ELC/ELCI to get involved. Access information: The webinar will take place on zoom at 2.00pm 14th September 2023. It will last 90 minutes including two short breaks. Live captioning will be turned on. There will be live BSL translation. The webinar will be recorded to be made available online afterwards. Register for the webinar here: https://www.eventbrite.com/e/research-findings-launch-gender- health-care-energy-limiting-conditions-tickets-692346626397?aff=oddtdtcreator best wishes, Dr Ana Bê Pereira Senior Lecturer in Disability Studies Senior Academic Advisor Fellow (FHEA) Centre for Culture and Disability Studies Liverpool Hope University Hope Park Liverpool Student Drop-in hours: Please email to arrange a meeting time. Office: SSB 015 Extension: 3117 Email: pereira@hope.ac.uk<mailto:pereira@hope.ac.uk> http://www.AnaBePereira.com<http://www.anabepereira.com/> ------------------------------------------- Google Scholar<https://scholar.google.com.au/citations?user=6STiGEgAAAAJ&hl=en&oi=sra> OrcID<https://orcid.org/0000-0003-2908-7851> ------------------------------------------ Research Projects Funded BA/Leverhulme project: Disbelief and Disregard: The Gendered Experiences of Energy Limiting Chronic Illnesses in England<http://disbeliefdisregard.uk/> -------------------------------------------- Selected Recent Publications: NEW: Special issue: chronic illness and representation - JLCDS<https://www.liverpooluniversitypress.co.uk/toc/jlcds/17/2> Special Issue: Disability and Social Inclusion: Lessons from the Pandemic<https://www.cogitatiopress.com/socialinclusion/issue/view/332> (open access). Bê, A. (2022) Disability. In: L. Shepherd and C. Hamilton (eds) Gender Matters in Global Politics: A Feminist Introduction to International Relations, Third Edition. Abingdon: Routledge. Bê, A. (2020) “Feminism and disability: A cartography of multiplicity.” In: N. Watson and S. Vehmas (eds) Routledge Handbook of Disability Studies. Abingdon: Routledge. pp. 421-435. Bê, A. (2019) Disabled people and subjugated knowledges: new understandings and strategies developed by people living with chronic conditions, Disability & Society, DOI: https://doi.org/10.1080/09687599.2019.1596785 Bê, A. (2019) Ableism and disablism in higher education: The case of two students living with chronic illnesses. ALTER, European Journal of Disability Research, https://doi.org/10.1016/j.alter.2019.03.004 Bê, A. (2016) Disablism in the lives of people living with a chronic illness in England and Portugal, Disability & Society, 31:4, 465-480, DOI: 10.1080/09687599.2016.1181048 ________________End of message________________ This Disability-Research Discussion list is managed by the Centre for Disability Studies at the University of Leeds (www.leeds.ac.uk/disability-studies). Enquiries about list administration should be sent to disability-research-request@jiscmail.ac.uk Archives and tools are located at: www.jiscmail.ac.uk/lists/disability-research.html You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page.