Nancy E Hansen, PhD,
Professor, Director,
Interdisciplinary Master's Program,Disability Studies
Accessibility is not an optics issue or a choice it is a necessity
If you say I have special needs ... then just say the word disabled. Euphemisms only fuel ableism. Disability is not a dirty word. Haben Girma
True Inclusion moves at the speed of trust. Atif Choudhury
128 Education Building
University of Manitoba, Winnipeg,
Manitoba, Canada, R3T 2N2
Email:Nancy.Hansen@umanitoba.camailto:Nancy.Hansen@umanitoba.ca
Chapter 18: DisAppearing Disability: Disability MAiD Invisible, by Nancy Hansen
https://canadianscholars.ca/book/disappearing/
From: The Disability-Research Discussion List DISABILITY-RESEARCH@JISCMAIL.AC.UK on behalf of Ana Bê Pereira ambaila@HOTMAIL.COM
Sent: Tuesday, August 29, 2023 7:17 AM
To: DISABILITY-RESEARCH@JISCMAIL.AC.UK DISABILITY-RESEARCH@JISCMAIL.AC.UK
Subject: Research findings launch: Disbelief and Disregard: Gendered Experiences of Health and Social Care for people with Energy Limiting Conditions
Caution: This message was sent from outside the University of Manitoba.
Dear Colleagues,
You are warmly invited to attend this webinar and please share in your networks.
Research findings launch: Disbelief and Disregard: Gendered Experiences of Health and Social Care
for people with Energy Limiting Conditions
For the last 18 months, researchers from University of Liverpool, Liverpool Hope University and
Chronic Illness Inclusion have been researching gendered experiences of disbelief and disregard in
relation to Energy Limiting Conditions (ELCs) also referred to as Energy Limiting Chronic Illness (ELCI).
Join us at 2.00pm (BST) on 14th September 2023 for a 90min webinar (with two short breaks) as we
launch the policy report and animation which document the results of the research. There will be
time for a Q&A. We will also launch a new project with opportunities for people with ELC/ELCI to get
involved.
This webinar will launch resources from the research, including:
A series of briefing papers and a research report based on original data collected by Chronic
Illness Inclusion. This demonstrates the barriers to care experienced by people with ELCs.
A short animation by Stacy Bias of YourStory.studio and Ell Rose of Fourfooteleven.com that
summarises the experiences of disbelief faced by people with ELCs in health care.
We will also launch a new project with opportunities for people with ELC/ELCI to get
involved.
Access information:
The webinar will take place on zoom at 2.00pm 14th September 2023. It will last 90 minutes
including two short breaks. Live captioning will be turned on. There will be live BSL translation. The
webinar will be recorded to be made available online afterwards.
Register for the webinar here: https://www.eventbrite.com/e/research-findings-launch-gender-
health-care-energy-limiting-conditions-tickets-692346626397?aff=oddtdtcreator
best wishes,
Dr Ana Bê Pereira
Senior Lecturer in Disability Studies
Senior Academic Advisor
Fellow (FHEA)
Centre for Culture and Disability Studies
Liverpool Hope University
Hope Park
Liverpool
Student Drop-in hours: Please email to arrange a meeting time.
Office: SSB 015
Extension: 3117
Research Projects
Funded BA/Leverhulme project: Disbelief and Disregard: The Gendered Experiences of Energy Limiting Chronic Illnesses in Englandhttp://disbeliefdisregard.uk/
Selected Recent Publications:
NEW: Special issue: chronic illness and representation - JLCDShttps://www.liverpooluniversitypress.co.uk/toc/jlcds/17/2
Special Issue: Disability and Social Inclusion: Lessons from the Pandemichttps://www.cogitatiopress.com/socialinclusion/issue/view/332 (open access).
Bê, A. (2022) Disability. In: L. Shepherd and C. Hamilton (eds) Gender Matters in Global Politics: A Feminist Introduction to International Relations, Third Edition. Abingdon: Routledge.
Bê, A. (2020) “Feminism and disability: A cartography of multiplicity.” In: N. Watson and S. Vehmas
(eds) Routledge Handbook of Disability Studies. Abingdon: Routledge. pp. 421-435.
Bê, A. (2019) Disabled people and subjugated knowledges: new understandings and strategies developed by people living with chronic conditions, Disability & Society, DOI: https://doi.org/10.1080/09687599.2019.1596785
Bê, A. (2019) Ableism and disablism in higher education: The case of two students living with chronic illnesses. ALTER, European Journal of Disability Research, https://doi.org/10.1016/j.alter.2019.03.004
Bê, A. (2016) Disablism in the lives of people living with a chronic illness in England and Portugal, Disability & Society, 31:4, 465-480, DOI: 10.1080/09687599.2016.1181048
End of message This Disability-Research Discussion list is managed by the Centre for Disability Studies at the University of Leeds (www.leeds.ac.uk/disability-studies). Enquiries about list administration should be sent to disability-research-request@jiscmail.ac.uk Archives and tools are located at: www.jiscmail.ac.uk/lists/disability-research.html You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page.
Nancy E Hansen, PhD,
Professor, Director,
Interdisciplinary Master's Program,Disability Studies
Accessibility is not an optics issue or a choice it is a necessity
If you say I have special needs ... then just say the word disabled. Euphemisms only fuel ableism. Disability is not a dirty word. Haben Girma
True Inclusion moves at the speed of trust. Atif Choudhury
128 Education Building
University of Manitoba, Winnipeg,
Manitoba, Canada, R3T 2N2
Email:Nancy.Hansen@umanitoba.ca<mailto:Nancy.Hansen@umanitoba.ca>
Chapter 18: DisAppearing Disability: Disability MAiD Invisible, by Nancy Hansen
https://canadianscholars.ca/book/disappearing/
________________________________
From: The Disability-Research Discussion List <DISABILITY-RESEARCH@JISCMAIL.AC.UK> on behalf of Ana Bê Pereira <ambaila@HOTMAIL.COM>
Sent: Tuesday, August 29, 2023 7:17 AM
To: DISABILITY-RESEARCH@JISCMAIL.AC.UK <DISABILITY-RESEARCH@JISCMAIL.AC.UK>
Subject: Research findings launch: Disbelief and Disregard: Gendered Experiences of Health and Social Care for people with Energy Limiting Conditions
Caution: This message was sent from outside the University of Manitoba.
Dear Colleagues,
You are warmly invited to attend this webinar and please share in your networks.
Research findings launch: Disbelief and Disregard: Gendered Experiences of Health and Social Care
for people with Energy Limiting Conditions
For the last 18 months, researchers from University of Liverpool, Liverpool Hope University and
Chronic Illness Inclusion have been researching gendered experiences of disbelief and disregard in
relation to Energy Limiting Conditions (ELCs) also referred to as Energy Limiting Chronic Illness (ELCI).
Join us at 2.00pm (BST) on 14th September 2023 for a 90min webinar (with two short breaks) as we
launch the policy report and animation which document the results of the research. There will be
time for a Q&A. We will also launch a new project with opportunities for people with ELC/ELCI to get
involved.
This webinar will launch resources from the research, including:
A series of briefing papers and a research report based on original data collected by Chronic
Illness Inclusion. This demonstrates the barriers to care experienced by people with ELCs.
A short animation by Stacy Bias of YourStory.studio and Ell Rose of Fourfooteleven.com that
summarises the experiences of disbelief faced by people with ELCs in health care.
We will also launch a new project with opportunities for people with ELC/ELCI to get
involved.
Access information:
The webinar will take place on zoom at 2.00pm 14th September 2023. It will last 90 minutes
including two short breaks. Live captioning will be turned on. There will be live BSL translation. The
webinar will be recorded to be made available online afterwards.
Register for the webinar here: https://www.eventbrite.com/e/research-findings-launch-gender-
health-care-energy-limiting-conditions-tickets-692346626397?aff=oddtdtcreator
best wishes,
Dr Ana Bê Pereira
Senior Lecturer in Disability Studies
Senior Academic Advisor
Fellow (FHEA)
Centre for Culture and Disability Studies
Liverpool Hope University
Hope Park
Liverpool
Student Drop-in hours: Please email to arrange a meeting time.
Office: SSB 015
Extension: 3117
Email: pereira@hope.ac.uk<mailto:pereira@hope.ac.uk>
http://www.AnaBePereira.com<http://www.anabepereira.com/>
-------------------------------------------
Google Scholar<https://scholar.google.com.au/citations?user=6STiGEgAAAAJ&hl=en&oi=sra>
OrcID<https://orcid.org/0000-0003-2908-7851>
------------------------------------------
Research Projects
Funded BA/Leverhulme project: Disbelief and Disregard: The Gendered Experiences of Energy Limiting Chronic Illnesses in England<http://disbeliefdisregard.uk/>
--------------------------------------------
Selected Recent Publications:
NEW: Special issue: chronic illness and representation - JLCDS<https://www.liverpooluniversitypress.co.uk/toc/jlcds/17/2>
Special Issue: Disability and Social Inclusion: Lessons from the Pandemic<https://www.cogitatiopress.com/socialinclusion/issue/view/332> (open access).
Bê, A. (2022) Disability. In: L. Shepherd and C. Hamilton (eds) Gender Matters in Global Politics: A Feminist Introduction to International Relations, Third Edition. Abingdon: Routledge.
Bê, A. (2020) “Feminism and disability: A cartography of multiplicity.” In: N. Watson and S. Vehmas
(eds) Routledge Handbook of Disability Studies. Abingdon: Routledge. pp. 421-435.
Bê, A. (2019) Disabled people and subjugated knowledges: new understandings and strategies developed by people living with chronic conditions, Disability & Society, DOI: https://doi.org/10.1080/09687599.2019.1596785
Bê, A. (2019) Ableism and disablism in higher education: The case of two students living with chronic illnesses. ALTER, European Journal of Disability Research, https://doi.org/10.1016/j.alter.2019.03.004
Bê, A. (2016) Disablism in the lives of people living with a chronic illness in England and Portugal, Disability & Society, 31:4, 465-480, DOI: 10.1080/09687599.2016.1181048
________________End of message________________ This Disability-Research Discussion list is managed by the Centre for Disability Studies at the University of Leeds (www.leeds.ac.uk/disability-studies). Enquiries about list administration should be sent to disability-research-request@jiscmail.ac.uk Archives and tools are located at: www.jiscmail.ac.uk/lists/disability-research.html You can VIEW, POST, JOIN and LEAVE the list by logging in to this web page.